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Your GP, hospital doctors and other health professionals are there to support you, and to give you information. They are the only people who can tell you more about your particular cancer and its treatment. It is part of their job to talk to you, so feel free to ask them questions.
Your cancer team may have a lung cancer or other nurse specialist who is an expert in helping people with your type of cancer.
You can contact one of our Cancer Information Centres for confidential advice.
For more information, you may find the following suggestions helpful...
Mesothelioma UK
The national mesothelioma resource centre is a base from which high-quality information is available for patients, carers and healthcare professionals.
National Mesothelioma Helpline
0800 169 2409
Monday – Friday 8:30am - 4:30pm. A professional and confidential telephone helpline giving practical advice and counselling.
Pleural Mesothelioma An advocacy group that assists patients and families suffering from asbestos-related diseases. They provide informational books and packets and access to local support groups. They help patients find the best doctors and treatment centres in their area. All services are free of charge.
British Lung Foundation
Website with an information page on mesothelioma.
Macmillan Cancer Support
National charity. One of the leading cancer information services.
The website covers general information, causes and diagnosis, treatment, clinical trials, resources and support. Our link takes you to their pages about mesothelioma.
Macmillan Support Line: 0808 808 0000
CancerHelp UK
This is a website hosted by Cancer Research UK. It aims to provide easily readable and comprehensive information about cancer. Our link takes you to their pages about mesothelioma.
Cancer Index (guide to Internet resources for cancer)
You can use this guide to find worldwide sites on mesothelioma and related subjects.
DIPEx (Database of Individual Patient Experience)
A national charity. Patient experience website. It aims to inform patients’ carers, families, and health professionals too. There are personal stories about how other people have coped with mesothelioma and lung cancer. DIPEx is a website which offers the opportunity to view video, hear audio and read about different patients’ experiences.
Health and Safety Executive
Website contains information on safety and its enforcement in the workplace.
Health Information Resources
This NHS site contains information on screening and diagnosis, treatment, clinical trials, drugs, patient support, clinical guidelines and other topics. Use the ‘search’ box to find information quickly.
Occupational and Environmental Diseases Association (OEDA)
Website has information on mesothelioma.
Oncolink
University of Pennsylvania (USA) site for both public and professionals. Oncology (cancer study) news and information. Extensive and informative. Patients’ questions & experts’ answers. Latest news. Daily updates.
Ridings Asbestos Support & Awareness Group (RASAG)
RASAG runs the National Mesothelioma Helpline (see separate entry above). Their website has information on asbestos-related diseases and hosts a discussion forum. The Group produce free booklets about mesothelioma.
Asbestos.com is an authority on asbestos exposure and mesothelioma information. The Mesothelioma Center works with individuals and their families and provides free informational resources.
Carers
Macmillan Cancer Support produce a useful series of leaflets.
Caring for someone with advanced cancer
For older people with cancer who must care for others, Cancer and older people and Looking after someone with fatigue
Hello and How Are You
A handbook written by people who have had personal experience of caring for someone with cancer, to help others in a similar situation. Available free by calling Macmillan Support Line on 0808 808 0000
Publications: order via Macmillan Support Line, on-line or in writing to
Macmillan Cancer Support, 89 Albert Embankment, London, SE1 7UQ.
Palliative care
We have a page about services and sources of further information.
Cruse Bereavement Care
The largest bereavement charity in the UK. It offers help to people trying to cope with death, whatever their circumstances. They have a range of free fact-sheets, as well as books of various cost.
Helpline: 0844 477 9400
Email: helpline@cruse.org.uk
